中国网络社群视角下神经多样性青年社交特征与心理体验的研究

Community-based inquiry into social communication patterns and psychological experiences of youth with neurodiversity in Chinese online communities

  • 摘要:
    目的 从中国网络社群内部视角探究神经多样性(ND)青年群体的社交特征、心理体验及支持需求。
    方法 采用社群参与式混合方法,通过中国ND网络社群招募参与者,共回收有效问卷103份,并对12名ND青年进行半结构化访谈。采用人工智能(AI)辅助文本分析技术,对网络社群公开评论及访谈文本进行探索性量化分析。
    结果  ND青年中86.4%具有一定的社交意愿,但普遍面临不同程度的社交困难。98.1%ND青年报告曾为适应社交互动采取相应策略,其中社交伪装是较常见的应对方式,仅19.4%的参与者认为相关努力取得了较好的效果,并伴随不同程度的身心负担。质性访谈显示,ND青年的社交困难涉及跨神经类型沟通差异、社交规则适应、社交伪装、感官环境及社会支持等多个方面。AI辅助文本分析显示文本情感倾向以中性为主(61.5%),高频词汇涉及社交困难、心理压力以及理解、包容和环境支持等内容。
    结论 ND青年的社交困境不宜简单归因于社交动机不足,而与跨神经类型沟通差异、环境适配及社交伪装负担等因素有关。未来应更加重视个体与环境的双向适配,构建更加包容和可及的支持体系。

     

    Abstract:
    Objective  To explore the social characteristics, psychological experiences and support needs of young people in Chinese online neurodiversity (ND) communities from an insider community perspective.
    Methods A community-participatory mixed-methods approach was adopted. Participants were recruited through Chinese online ND communities. A total of 103 valid questionnaires were collected, and semi-structured interviews were conducted with 12 ND youth. In addition, artificial intelligence (AI)-assisted text analysis was used to quantitatively explore publicly available comments from online communities and interview transcripts.
    Results Most ND youth (86.4%) expressed some desire for social connection but experienced varying degrees of social difficulty. Overall, 98.1% of participants reported using strategies to adapt to social interactions, with social camouflaging being a common coping strategy. Only 19.4% considered these efforts to be effective, and such efforts were accompanied by varying degrees of psychological and physical burden. Qualitative interviews showed that the social difficulties experienced by young ND individuals involved differences in cross-neurotype communication, adaptation to social rules, social masking, sensory environments, and social support. AI-assisted text analysis showed that neutral sentiment predominated (61.5%), while frequently occurring words concerned social difficulties, psychological distress, understanding, inclusion, and environmental support.
    Conclusion The social difficulties experienced by ND youth should not be attributed simply to reduced social motivation, but are associated with differences in cross-neurotype communication, environmental fit, and the burden associated with social camouflaging. Greater emphasis should be placed on reciprocal person–environment adaptation and on developing more inclusive and accessible support systems.

     

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