数字健康技术在重症肌无力患者健康管理中的应用进展

Progress in the application of digital health technologies in the health management of patients with myasthenia gravis

  • 摘要: 重症肌无力由于治疗周期较长,病情容易出现反复且具有潜在致死性,给患者和家庭带来沉重的疾病负担,亟须对患者进行长期有效的健康管理。数字健康技术在重症肌无力患者的健康管理中展现出重要潜力。症状数字化评估通过人工智能技术实现了眼睑下垂、呼吸功能及核心体征的客观量化,提升了远程评估的准确性;远程动态监测通过移动平台与可穿戴设备整合症状、用药及生理数据,实现持续监测与早期预警,改善患者自我管理能力;数字化健康认知引导通过大语言模型与数字视频平台提供个体化健康宣教,助力知识传播,弥补传统宣教资源的不足。文章对重症肌无力患者症状数字化评估、远程动态监测和数字化健康认知引导进行综述,旨在为未来重症肌无力患者的数字健康管理提供借鉴。

     

    Abstract: Myasthenia gravis (MG) is manifested with prolonged treatment duration, fluctuating symptoms and potential lethality, and imposes a significant disease burden on both patients and their families, necessitating long-term and effective health management. Digital health technologies demonstrate significant potential in the health management of MG patients. Digital symptom assessment employs artificial intelligence to achieve objective quantification of ptosis, respiratory function, and vital signs, thereby enhancing the accuracy of remote assessment. Remote dynamic monitoring integrates data related to symptoms, medication and physiological parameters via mobile platforms and wearable devices and enables continuous monitoring and early warning, thereby elevating patients’ self-management capabilities. Digital health cognitive guidance, facilitated by large language models and digital video platforms, can provide personalized health education, promote knowledge dissemination and address the limitations of traditional educational resources. This review summarizes the applications of digital symptom assessment, remote dynamic monitoring and digital health education in MG patients, aiming to provide insights for future digital health management strategies for MG patients.

     

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